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October 24, 2011 – Dove Canyon, CA

The Hailey’s Wish 2011 California Golf Tournament will be held at Dove Canyon Country Club on Monday, October 24th.

With your support we will sponsor a Mitochondrial disease specialist to lecture at a local hospital, allowing members of the medical community and public to attend to enhance their knowledge of mitochondrial disease. Additionally, we will support mitochondrial disease research at the University of California, San Diego. Supporting research allows us to “think globally and act locally.” As scientists find better treatments and testing methods, they become discoveries that impact global health.

Keep scientific research alive by participating in this event. Mitochondrial researchers are not funded by the University they operate under. They rely solely on grants and public funding! Your tax-deductible donation will fund researchers which will lead to breakthroughs in Mitochondrial medicine!

“No salaries, no scientists, no science, no research, no hope for our children.” R. Naviaux

Tournament Details

Single Golfer - $225

Foursome - $800

Dinner Only - $50

Dove Canyon Country Club is a private club located at: 
22682 Golf Club Drive, Dove Canyon, Ca 92679. Tel: 949-858-2800

10:30-12pm Golfer’s Arrive and Register
12:00pm Golfing Starts
4:30pm-5:00pm Golfers finish up course & return to clubhouse
5:00pm-6:00pm No Host Cocktail Hour
6:00pm – Buffet Dinner and Awards Banquet Begins

There will be many great silent auction items to bid on and some great raffle items!! Thank you very much for your support and we look forward to seeing you there!

Dove Canyon Tournament Entry Form 2011

Prospective Donor Letter 2011

You must RSVP by July 31, 2011

Your tournament fee includes:

Round-trip Party Bus from McLoughlin’s
18-hole green fees
GPS-equipped golf cart
Finished Photograph of your team/foursome
Tee gift
Driving Range balls for warm-up
Luncheon Banquet
One free drink upon return to McLoughlin’s following the tournament

Proceeds to benefit Hailey’s Wish

More details visit McLoughlin’s Restaurant website:
“McLoughlin’s Restaurant”

“Mitochondrial Medicine in the 21st Century – From Bench to Bedside”

Greg Enns, MD
Associate Professor of Pediatrics
Director, Biochemical Genetics Program
Lucile Packard Children’s Hospital
Stanford University

January 13th 2010 –

Mitochondrial Diseases in Children: An Update

Fernando Scaglia, MD, FACMG Associate Professor of Genetics, Dept. of Molecular & Human Genetics Baylor College of Medicine and Texas Children’s Hospital.

Objectives: At the conclusion of this presentation, participants will be able to: 
1. Recognize clinical presentations of mitochondrial disorders. 
2. Refer patients and their families for further testing and management.

With Google’s assistance HaileysWish.org is helping to improve research and education for mitochondrial diseases.

We were invited by Dr. Jose Abdenur to tour the Metabolic Department Laboratory at Children’s Hospital of Orange County in Orange on April 1, 2008. Dr. Abdenur is the Medical Director of Metabolic Services at CHOC and the PSF Chief of the Metabolic Disorders Division.

Currently the Metabolic laboratory has the capability to run a limited number of tests to assist in getting rapid results for patients at CHOC. The time it takes to coordinate and then ship a lab sample for testing can delay a test result by weeks. Aquiring better testing equipment for the CHOC laboratory is only one of many ways your support will help!

And to our surprise, hanging on the wall, in the hallway of the laboratory was a large abstract of a clinical evaluation of Hailey’s medical journey. It turns out that Dr. Abdenur presented Hailey’s story at a conference to hundreds of medical professionals. His ability to share with this audience the facts of Hailey’s case and how her medical symptoms and lab work did not correlate to what he knew to be true about Mitochondrial Disease is just outstanding. It shows the medical community that mitochondrial diseases have many varying symptoms for the same disease so it is important to keep an open mind and realize there can always be exceptions to the rule.